I got my WADD supporter button from the website below!
http://www.lupusuk.org.uk/latest-news/world-autoimmune-arthritis-day
It’s World Autoimmune Arthritis Day!!
What have you done to keep moving today?
Mom update! (sorry I forgot to post about it on here)
My Mom did have her pacemaker put in Wednesday May 2nd. She had NO complications!!!! She is healing beautifully. Still getting used to keeping her left arm and hand down. (not above her head, apparently this may confuse the pacemaker) I couldn’t be happier. My mom ate her special cake (low sugar, for her diabetes) with us on my birthday the 15th, and I was honestly just thankful she was with me that day. Hopefully she will be able to share many more birthdays with me and my sister.
All The Best~ Dana
Quick life update!
So I turned 21 on the 15th. Yep I’m a Taurus! & NO I did not go out drinking. I love drinking, but its not good for my arthritis. As I was reminded today with a lovely flare-up. I can barley move my right hand/wrist. Maybe 10% mobility. I’m going to remain positive though! I had a great week thus far! Waiting for Lost Season 5 to come in the mail. My Papa and I have been watching an episode every week or so (basically when he has time) since September of last year. We start season 5 next! So excited!!
Okay this is going to be a short and quick update on my RA.
So I met with my lovely rhuematologist a few weeks ago. (I don’t remember the exact date) I told her all the issues I was having with the methotrexate, and that I just didn’t feel comfortable taking it anymore. So she examined me and had me full out a long ass form. (you know the one that basically asks you a bunch of questions about how hard certain tasks are for you) She examined me and then decided that it was best to move on to injectables (biologics). I agreed.
I have had reactions to more than 3 separate DMARD’s since September of 11. I tried them all for AT LEAST 3 months. I was equally miserable during each one. My body is telling me its not working. So its time to move on. We discussed methotrexate injections, but I decided against that because as I said earlier I’m just not comfortable being on it. As in any form of it. Then she discussed the different kinds of injectables that would be a good choice for my specific disease. Humira, enbrel, Cimzia, Kineret, and finally Simponi. We looked at the differences in each, I was leaning towards Enbrel until I heard about Simponi. It’s a little bit newer from what I’ve gathered and its a ONCE A MONTH injectable. Yes you read that correctly. ONCE A MONTH. I was sold. I don’t enjoy the idea of shooting myself up with this medication daily, weekly, and or every two-weeks. Yes I know its a needle, and its not that big of a deal to a lot of people, but it kinda is a big deal to me. After discussing it with my mom and Dr.G I had decided on the Simponi. She gave me my first injection that day in the office by syringe (although I will have the pen, and I will be self injecting in the leg) in the stomach. Stung for about 3 seconds and it was over with. No itching, burning, or redness. I take my next dose on Friday. I will update you all if I have any side effects!
All The Best~ Dana
Hey loves! I’m back. I probably won’t be posting on this blog as often as I would like. I still have a lot going on in my personal life. I will update you all in time. I just have to write it all out and then put it up on my personal and here.
I will be updating you on my arthritis shortly, so look out for that post!
I’m not going to be on this blog for a while. I’m really sorry. I just have A LOT going on right now. (outside of arthritis) You can read more about it on my personal blog. Link is below.
WARNING it is depressing. http://danadizzy.tumblr.com/post/15494576715/my-mom-was-diagnosed-with-chf-nothing-makes-sence-i
